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Updated: Oct 18, 2025

Protocol and Guidelines for Point-of-Care Lung Ultrasound in Diagnosing Neonatal Pulmonary Diseases Based on International Expert Consensus
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Published on: March 6, 2019

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Palliative Care in Pediatric Pulmonology

Taylor Baumann1, Shailendra Das2, Jill Ann Jarrell3

  • 1Department of Pediatrics, Texas Children's Hospital, Baylor College of Medicine, Houston, TX 77030, USA.

Children (Basel, Switzerland)
|September 28, 2021
PubMed

Insights

Palliative care is crucial for children with end-stage lung disease (ESLD). This study reviews ESLD cases and integrates palliative care, offering insights for diverse healthcare settings.

Area of Science:

  • Pediatrics
  • Palliative Care
  • Pulmonology

Background:

  • Children with end-stage lung disease (ESLD) represent a growing population with life-limiting conditions.
  • These patients exhibit complex pulmonary, cardiovascular, neuromuscular, and developmental issues.

Purpose of the Study:

  • To examine the integration of palliative care in managing pediatric ESLD.
  • To present case studies from both high-income and low-income country perspectives.

Main Methods:

  • Review of five pediatric ESLD cases (cystic fibrosis, bronchopulmonary dysplasia, neuromuscular disease, pulmonary hypertension, lung transplantation) at Texas Children's Hospital.
  • Analysis of palliative care integration for each diagnosis.
  • Review of two pediatric ESLD cases at Hospital Civil de Guadalajara.

Main Results:

  • Detailed clinical course and palliative care management strategies for diverse pediatric ESLD diagnoses were examined.
  • Case studies illustrate the application of palliative care in varied clinical and resource settings.

Conclusions:

  • Palliative care is essential for comprehensive management of pediatric end-stage lung disease.
  • Integrating palliative care requires tailored approaches considering specific diagnoses and healthcare environments, including resource-limited settings.

Keywords:
bronchopulmonary dysplasiacommunicationcystic fibrosislung transplantneuromuscular diseasepalliative carepediatric pulmonologyprimary palliationpsychosocial supportpulmonary hypertensionquality of life

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