Genetic counseling experiences at the University of Cape Town during COVID-19

Tina-Marié Wessels1, Gillian Düsterwald1, Robyn Barlow1

  • 1Division Human Genetics, Department of Pathology, Faculty Health Sciences, University of Cape Town, Cape Town, South Africa.

Insights

The COVID-19 pandemic disrupted genetic counseling services and training in South Africa, leading to increased telecounseling and remote learning. Trainees faced uncertainty and lost confidence with real patients, highlighting challenges in service delivery and training.

Area of Science:

  • Medical Genetics
  • Public Health
  • Healthcare Management

Background:

  • The COVID-19 pandemic prompted national lockdowns in South Africa, significantly impacting healthcare services and education.
  • Genetic Counseling Services experienced a shift from in-person to telecounseling, and academic institutions adopted emergency remote teaching (ERT).

Purpose of the Study:

  • To present the experiences of a Genetic Counseling team in South Africa regarding learning and clinical services during the COVID-19 pandemic.
  • To identify challenges and lessons learned to improve future training and service delivery.

Main Methods:

  • A qualitative approach was used, involving an online group discussion among the Genetic Counseling team in November 2020.
  • The discussion was recorded, transcribed, and key themes were identified.

Main Results:

  • Emergency remote teaching (ERT) with simulated cases was helpful but reduced trainee confidence with real patients.
  • Telecounseling was effective via video, but telephone services for advanced maternal age counseling were hindered by network issues.
  • Genetic counselors reported a significant loss of connection with peers, supervisors, and patients.

Conclusions:

  • The pandemic presented both positive and negative aspects for genetic counseling training and service delivery in South Africa.
  • Lessons learned emphasize the need for improved training methods and robust telecounseling infrastructure to address future disruptions.

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