An International Terminology for Endometriosis, 2021.

Area of Science:

• Gynecology
• Reproductive Medicine
• Medical Terminology

Background:

• Existing endometriosis classification systems lack standardization in definitions for disease subtypes, symptoms, and treatments.
• A need for a unified terminology was identified to support consistent endometriosis research and clinical practice.
• An international working group was convened to develop a consensus-based endometriosis glossary.

Purpose of the Study:

• To establish a standardized set of terms and definitions for endometriosis.
• To provide a foundation for consistent disease description, classification, and research in endometriosis.
• To facilitate international collaboration and understanding in the field of endometriosis.

Main Methods:

• A working group identified relevant terms and documented existing definitions.
• Definitions were discussed, adapted, and refined through consensus within the working group.
• Stakeholder review and feedback from international societies led to further clarifications and adaptations.

Main Results:

• A comprehensive list of 49 terms and definitions related to endometriosis was developed.
• The terminology includes definitions for endometriosis, its subtypes, locations, interventions, symptoms, and outcomes.
• Endometriosis is defined as a disease involving endometrium-like tissue outside the uterus, often with inflammation.

Conclusions:

• The developed terminology provides a standardized framework for endometriosis.
• Application of these terms aims to harmonize endometriosis research and clinical practice.
• Future research may necessitate further refinement of these definitions.