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LIMPRINT in Italy.

Marina Cestari1, Sandro Michelini2, Maurizio Ricci3

  • 1O.U. Territorial Rehabilitation, NHS Umbria 2, Terni, Italy.

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Summary
This summary is machine-generated.

This study profiled chronic edema patients in Italy, revealing significant mobility limitations and varied treatment access. Subsequent advocacy led to improved care reimbursement for lymphedema patients.

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Italian prevalenceLIMPRINTchronic edemalymphedema

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Area of Science:

  • Medical Research
  • Clinical Epidemiology
  • Public Health

Background:

  • Chronic edema (CE) presents a significant health challenge with varying patient profiles.
  • Understanding the characteristics of patients with CE is crucial for optimizing care pathways.

Purpose of the Study:

  • To define the demographic, clinical, and treatment profiles of patients with chronic edema across three Italian centers.
  • To assess the impact of current treatment patterns and healthcare system access on CE patient outcomes.

Main Methods:

  • Cross-sectional study involving 1637 patients referred for chronic edema between September 2016 and July 2017.
  • Data collection included patient demographics, CE type (primary/secondary), mobility status, comorbidities (e.g., leg ulceration), and prescribed treatments.
  • Analysis of treatment patterns, access to subsidized care, and proximity to treatment centers.

Main Results:

  • The study identified a predominantly female patient population (80.6%) with a mean age of 54 years.
  • Secondary CE was more prevalent (71.8%) than primary CE (28.2%), with cancer being the leading cause of secondary CE.
  • Significant findings included limited mobility in 15.5% of upper body and 9.6% of lower limb assessments, and concurrent leg ulceration in 32.9% of patients. Treatment adherence was suboptimal, with 29.4% receiving no prescribed treatment and only 50.4% accessing subsidized care.
  • Access to treatment centers was also limited, with only half of patients having facilities near their homes.

Conclusions:

  • The study highlighted significant unmet needs in chronic edema management, including disparities in treatment access and mobility impairment.
  • Findings from this research contributed to policy changes, improving reimbursement for primary and secondary lymphedema care in Italy.
  • These changes have created a more positive outlook for individuals affected by lymphedema.