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Continuing Care01:25

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Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
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Aneurysm management involves either conservative medical therapy or surgical intervention, depending on the size and symptoms of the aneurysm. Conservative management is generally reserved for smaller, asymptomatic aneurysms, while larger or symptomatic aneurysms often necessitate surgical repair.Conservative Medical TherapyFor small, asymptomatic aneurysms, particularly abdominal aortic aneurysms (AAA) less than 5.5 centimeters in diameter, conservative medical therapy is recommended. This...
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Intravenous anesthetics are drugs administered parenterally to induce anesthesia or sedation. Propofol is a widely used agent formulated as a 1% emulsion in soybean oil, glycerol, and egg phosphatide. It induces rapid anesthesia primarily due to its rapid distribution from the bloodstream to target tissues and is metabolized in the liver. However, it can cause significant pain on injection and hypertriglyceridemia. Fospropofol, a water-based prodrug of propofol, lacks these adverse effects.
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Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
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Nurses bear specific legal responsibilities under several federal statutes, including:
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Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
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Neuropalliative Care for Neonates.

Sharla Rent1, Margarita Bidegain1, Margaret H Bost1

  • 1Department of Pediatrics, 12277Duke University School of Medicine, Durham, NC, USA.

Journal of Child Neurology
|October 22, 2021
PubMed
Summary
This summary is machine-generated.

Neonatal neuropalliative care integrates neurology and palliative care for infants with serious neurologic conditions. This approach supports families through antenatal diagnosis, NICU care, and discharge, focusing on communication, prognostication, decision-making, and symptom management.

Keywords:
infantneonatepediatricpretermquality of life

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Area of Science:

  • Neurology
  • Palliative Care
  • Neonatal Medicine

Background:

  • Serious neurologic conditions often manifest in the perinatal period, significantly impacting infant lives.
  • Early diagnosis and intervention are crucial for managing these complex conditions.
  • Existing care models may not fully address the unique needs of neonates and their families facing these challenges.

Purpose of the Study:

  • To outline key considerations for implementing a neuropalliative care approach in neonates.
  • To guide neurologists in providing comprehensive care from antenatal diagnosis through hospital discharge.
  • To explore essential domains of neonatal neuropalliative care.

Main Methods:

  • This review synthesizes core practices from neurology and palliative care.
  • It examines the application of these practices in antenatal, neonatal intensive care unit (NICU), and discharge settings.
  • The review focuses on four core domains: communication, prognostication, decision-making, and symptom management.

Main Results:

  • Neonatal neuropalliative care emphasizes family-centered communication and accurate prognostication.
  • It addresses complex decision-making processes and effective pain and symptom management.
  • Special considerations for end-of-life care and diverse cultural contexts are highlighted.

Conclusions:

  • Integrating palliative care principles into neonatal neurology is essential for optimizing care for infants and families.
  • A structured neuropalliative approach enhances communication, decision-making, and symptom control.
  • This framework supports a holistic care model for neonates with serious neurologic conditions.