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Serious illness conversations in pulmonary hypertension
Reem Ismail1, Sara Hegab1, Bryan Kelly1
1Division of Pulmonary and Critical Care Medicine, Henry Ford Hospital, Detroit, USA.
Pulmonary Circulation
|November 4, 2021
Summary
Pulmonary arterial hypertension (PAH) management has improved, yet challenges persist. This paper proposes a framework for compassionate conversations to navigate complex patient care and goals.
Area of Science:
- Cardiology
- Pulmonology
- Clinical Medicine
Background:
- Pulmonary arterial hypertension (PAH) has transitioned from a fatal diagnosis to a chronic condition with improved survival.
- Advances in therapies and risk stratification scores have enhanced clinical decision-making and patient outcomes.
- Despite progress, significant challenges remain, including treatment burdens and late-stage disease presentation.
Purpose of the Study:
- To address the persistent challenges in managing pulmonary arterial hypertension (PAH).
- To highlight the importance of compassionate and goal-oriented conversations in clinical care.
- To propose a framework for integrating these essential discussions into routine patient management.
Main Methods:
- Review of current challenges in PAH treatment and patient care.
- Analysis of barriers to effective clinical communication, including time constraints.
- Development of a proposed framework for facilitating goal-centered discussions.
Main Results:
- PAH treatment has improved, but patient quality of life and advanced disease presentation remain concerns.
- Effective communication is crucial for navigating the long-term course of PAH and respecting patient goals.
- Clinicians face barriers, such as time limitations and apprehension about discussing prognosis.
Conclusions:
- A proactive and compassionate approach to patient conversations is essential in PAH management.
- The proposed framework aims to empower clinicians and improve patient-centered care.
- Addressing communication challenges can enhance the quality of life for individuals with PAH.
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