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Reinforcing Health Data Sharing Through Data Democratization.

Yuhang Wang1, Bian Yang1

  • 1Department of Information Security and Communication Technology, Norwegian University of Science and Technology, Gjøvik, Norway.

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Summary
This summary is machine-generated.

We propose Health Democratization (HD), a novel infrastructure for democratic health data sharing. Our "reverse onus" mechanism incentivizes responsible data access, fostering a trustworthy ecosystem.

Keywords:
data democratizationeHealthhealth data infrastructureprivacy enhancing

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Area of Science:

  • Health Informatics
  • Data Governance
  • Computer Science

Background:

  • Current health data sharing faces structural and functional challenges.
  • Lack of seamless data mobility across trust boundaries hinders research and patient empowerment.
  • Existing systems often lack mechanisms to ensure data integrity and responsible access.

Purpose of the Study:

  • To propose a health data sharing infrastructure promoting a democratic ecosystem.
  • To enable seamless health data mobility across trust boundaries.
  • To address infrastructure challenges through data democratization.

Main Methods:

  • Programmatic design of the Health Democratization (HD) platform.
  • Elaboration of an "reverse onus" mechanism for incentivizing data access.
  • Exploration of structural and functional solutions for data sharing.

Main Results:

  • A detailed programmatic design for the HD platform was developed.
  • The "reverse onus" mechanism shows promise in encouraging credible data access.
  • The proposed infrastructure addresses key challenges in health data sharing.

Conclusions:

  • The Health Democratization (HD) infrastructure offers a viable path towards a democratic health data sharing ecosystem.
  • The "reverse onus" mechanism is a key component for fostering trust and accountability.
  • This approach has the potential to significantly improve health data mobility and utilization.