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A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
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A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting

Published on: January 12, 2018

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Parent priorities for research and communication concerning childhood outcomes following preterm birth

Lorna Ginnell1, James P Boardman2, Rebecca M Reynolds3

  • 1Salvesen Mindroom Research Centre, University of Edinburgh, Edinburgh, UK.

Wellcome Open Research
|November 10, 2021
PubMed

Insights

Parents of preterm children prioritize research on protective factors for cognitive and developmental outcomes. They prefer early communication about risks and identify knowledge gaps in healthcare and education professionals.

Area of Science:

  • Pediatrics
  • Developmental Psychology
  • Public Health

Background:

  • Children born preterm face risks for adverse childhood outcomes.
  • Parental priorities for research and information delivery regarding these outcomes are not well-established.
  • Understanding these preferences is crucial for effective support and intervention.

Purpose of the Study:

  • To identify parent priorities for research concerning preterm children's outcomes.
  • To determine parents' preferred methods and timing for receiving information about these risks.
  • To inform future research and support strategies for families of preterm infants.

Main Methods:

  • An online survey was distributed via social media to 148 parents of preterm children (0-12 years) in the UK.
  • The survey included rating scale, multiple choice, ranking, and open-ended questions.
  • Quantitative data underwent descriptive analysis; qualitative data were analyzed using framework analysis.

Main Results:

  • Parents prioritize research focused on identifying protective factors for cognitive and developmental outcomes.
  • Most parents prefer information delivery to commence within the first year of their child's life.
  • A notable knowledge gap was reported among health visitors, early years educators, and schools.

Conclusions:

  • Future research should prioritize identifying protective factors and developing interventions to enhance outcomes for preterm children.
  • Aligning research and communication with parental preferences can improve family and child experiences.
  • Enhanced training for health visitors and educational professionals is recommended to address identified knowledge gaps.

Keywords:
Childhood outcomesCommunicationParent prioritiesPreterm birthResearch

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