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Mapping Information Needs of Patients With Sexually Transmitted Infections Using Web-Based Data Sources: Grounded

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  • 1Department of Management Science and Systems, State University of New York at Buffalo, Buffalo, NY, United States.

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Individuals seeking information about sexually transmitted infections (STIs) have significant psychosocial needs beyond clinical and logistical concerns. Digital interventions must address these emotional and psychological aspects for greater effectiveness.

Keywords:
American Sexual Health Associationgrounded theoryhealth information seekinginformation needsonline forumpatient journey mapssexually transmitted diseasessexually transmitted infectionstigmastigmatizing disorders

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Area of Science:

  • Public Health
  • Digital Health
  • Health Communication

Background:

  • Sexually transmitted infections (STIs) are at record high incidence rates globally and in the US.
  • Stigma surrounding STIs leads to reluctance in seeking in-person health information.
  • Web-based sources are primary information channels but often lack a deep understanding of user needs.

Purpose of the Study:

  • To investigate the specific information needs of individuals with or suspecting STIs.
  • To inform the design of more effective digital health interventions for STI information seeking.

Main Methods:

  • Qualitative analysis of 549 transcripts from anonymized web-based forums (American Sexual Health Association).
  • Grounded theory approach with multi-stage coding to identify themes.
  • Analysis covered a 10-year period of user-generated queries.

Main Results:

  • Three categories of information needs were identified: clinical, logistical, and psychosocial.
  • Psychosocial needs, including concerns about confusion, discretion, and remorse, constituted approximately 59% of instances.
  • Information needs evolve throughout the patient's journey, from symptom onset to treatment maintenance.

Conclusions:

  • Effective support for individuals with STIs requires compassionate, personalized responses addressing psychosocial concerns.
  • Current web-based forums offer anonymity but lack mechanisms to adequately address diverse psychosocial needs.
  • Innovative digital approaches are needed to enhance support and improve the efficacy of digital interventions for STI information.