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Navigating Ethical Challenges for Pediatric Sickle Cell Pain Management in the Context of the Opioid Epidemic
Siddika S Mulchan1,2, Emily O Wakefield1,2, Sarah R Martin3
1Connecticut Children's, Hartford.
Insights
The opioid epidemic complicates pain management for pediatric sickle cell disease (SCD). An ethical framework aids decision-making, addressing bias and stigma to improve care for youth with SCD.
Area of Science:
- Pediatric Hematology
- Medical Ethics
- Public Health
Background:
- The opioid epidemic presents significant challenges to pain management in pediatric sickle cell disease (SCD).
- Ethical considerations in managing sickle cell pain are complex, influenced by psychosocial factors and provider biases.
- Existing guidelines for opioid prescribing may inadvertently impact clinical practices for youth with SCD.
Purpose of the Study:
- To examine the opioid epidemic's influence on pain management strategies for pediatric sickle cell disease.
- To propose a conceptual framework for ethical decision-making in pediatric sickle cell pain management.
Main Methods:
- Literature review on ethical challenges in sickle cell pain management within the context of the opioid epidemic.
- Application of the Integrated Ethical Framework for Pain Management (IEFPM) to pediatric SCD pain using a clinical case.
Main Results:
- Implicit bias, health-related stigma, and neurocognitive issues create unique ethical decision-making challenges for youth with SCD.
- National opioid prescribing guidelines can complicate provider decision-making and affect pain management practices.
- The IEFPM effectively addresses both patient and provider factors in pediatric sickle cell pain management.
Conclusions:
- The opioid epidemic intensifies ethical dilemmas in managing pain for youth with SCD.
- The IEFPM offers a valuable model for healthcare settings to enhance ethical decision-making and promote health equity in pediatric sickle cell pain care.
Objectives:
The aim was to describe the impact of the opioid epidemic on pain management practices in pediatric sickle cell disease (SCD) and propose a conceptual framework for navigating ethical decision-making in pediatric sickle cell pain management.
Methods:
A review of the literature on ethical challenges in the management of sickle cell pain was conducted and considered in the context of the opioid epidemic and psychosocial factors affecting youth with SCD. The Integrated Ethical Framework for Pain Management (IEFPM) was applied to pediatric sickle cell pain management using a clinical case example.
Results:
Implicit bias, health-related stigma, and potential neurocognitive impairment all present unique challenges in ethical decision-making for youth with SCD. National guidelines for prescribing opioid medication may complicate providers' clinical decision-making and affect their sickle cell pain management practices. The IEFPM was found to be applicable to ethical decision-making for pediatric sickle cell pain and captures both patient-related and provider-related aspects of clinical pain management.
Discussion:
The opioid epidemic has exacerbated existing ethical challenges for pain management among youth with SCD. The IEFPM provides a conceptual model that can be integrated into health care settings to facilitate ethical decision-making and promote greater health equity in the clinical management of pediatric sickle cell pain.
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