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Case completeness in the Norwegian Cardiac Arrest Registry
Kristin Alm-Kruse1,2, Ingvild Tjelmeland2,3,4, Håvard Kongsgård3
1Department of Research and Development, Division of Emergencies and Critical Care, Oslo University Hospital, Oslo, Norway.
Resuscitation Plus
|November 26, 2021
Summary
The Norwegian Cardiac Arrest Registry (NorCAR) demonstrates 96% case completeness for out-of-hospital cardiac arrests (OHCA). Missing OHCA cases were few and did not significantly alter patient demographics, confirming NorCAR
Area of Science:
- Emergency Medicine
- Cardiology
- Public Health Surveillance
Background:
- Out-of-hospital cardiac arrest (OHCA) is a critical public health issue.
- Accurate registries are vital for understanding OHCA epidemiology and improving outcomes.
- The Norwegian Cardiac Arrest Registry (NorCAR) aims to capture comprehensive OHCA data.
Purpose of the Study:
- To assess the case completeness of OHCA data within the Norwegian Cardiac Arrest Registry (NorCAR).
- To identify and characterize OHCA patients not included in NorCAR.
- To evaluate the representativeness of the registered OHCA population.
Main Methods:
- Compared NorCAR data with the Norwegian Patient Registry and Norwegian Cause of Death Registry.
- Utilized patient records to verify inclusion criteria for potential OHCA cases.
- Conducted a case-control assessment to identify discrepancies and missing data.
Main Results:
- Identified 11,114 potential OHCA cases, with 8,612 registered in NorCAR, achieving 96% case completeness.
- Found 344 (4%) eligible OHCA cases were missing from NorCAR.
- Missing OHCA patients showed similar demographics but higher survival rates and hospital transport frequency compared to registered patients.
Conclusions:
- NorCAR exhibits high case completeness for out-of-hospital cardiac arrests.
- The small number of missing cases suggests NorCAR is representative of the Norwegian OHCA population.
- The registry's data quality is sufficient for epidemiological analysis and quality improvement initiatives.
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