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Parental perceptions of bladder dysfunction in children with symptomatic joint hypermobility
Marianna Veriki1,2, Annette Coomer1,3, Jane V Simmonds1,4
1UCL Great Ormond Street Institute of Child Health, University College London, London, UK.
Summary
Symptomatic joint hypermobility in children often includes lower urinary tract dysfunction (LUTD), significantly impacting quality of life. Current treatments are often ineffective, highlighting a need for better management strategies.
Area of Science:
- Pediatric Urology
- Rheumatology
- Quality of Life Research
Background:
- Symptomatic joint hypermobility (SJH) presents with chronic pain, fatigue, and joint instability.
- Symptoms in SJH can extend to lower urinary tract dysfunction (LUTD), affecting children's well-being.
- Limited research exists on parent-perceived quality of life (QoL) and management strategies for LUTD in children with SJH.
Purpose of the Study:
- To explore parent-perceived QoL in children with LUTD associated with SJH.
- To identify symptom management strategies and their efficacy in this population.
- To understand the emotional impact of LUTD on children from a parental perspective.
Main Methods:
- An online cross-sectional survey was conducted with parents of children aged 6-18 years.
- Participants were recruited through two UK charitable organizations.
- Validated questionnaires included the Pediatric Incontinence Questionnaire (PinQ) and the Dysfunctional Voiding Symptom Score.
Main Results:
- Urgency (97%) and enuresis (41.7%) were the most common LUTD symptoms.
- The Pediatric Incontinence Questionnaire indicated significant emotional distress in children due to LUTD.
- Pharmacotherapy was perceived as most effective by 43% of parents; physiotherapy was accessed by only 16%.
Conclusions:
- Parents perceive LUTD as significantly impacting their child's QoL.
- Current treatments for LUTD in children with SJH often do not meet parental expectations.
- There is an urgent need for increased clinician education and development of effective, evaluated treatments.
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