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Preferences for Using a Mobile App in Sickle Cell Disease Self-management: Descriptive Qualitative Study
Tilicia L Mayo-Gamble1, Delores Quasie-Woode2, Jennifer Cunningham-Erves3
1Department of Health Policy and Community Health, Jiann-Ping Hsu College of Public Health, Georgia Southern University, Statesboro, GA, United States.
JMIR Formative Research
|December 1, 2021
Summary
Adults with sickle cell disease (SCD) and their caregivers are receptive to mobile health (mHealth) apps for self-management. These apps can help overcome information barriers and improve access to resources, especially for rural communities.
Area of Science:
- Health Informatics
- Patient Self-Management
- Digital Health
Background:
- Individuals with sickle cell disease (SCD) and their caregivers can benefit from technology for improved self-management.
- Current methods for accessing SCD information may have limitations.
Purpose of the Study:
- To explore preferences for a mobile health (mHealth) app for SCD self-management among adults and caregivers.
- To identify desired features and benefits of an mHealth app in urban and rural settings.
Main Methods:
- Five community listening sessions were conducted with 43 adults with SCD and their caregivers.
- An inductive-deductive content analysis approach was used to identify key themes.
Main Results:
- Seven critical themes emerged, including information access, disease management challenges, and app feature preferences.
- Participants showed receptiveness to using mHealth apps for SCD self-management.
- Barriers and facilitators to mHealth app adoption were identified.
Conclusions:
- mHealth technology can reduce information access barriers for SCD patients.
- Findings support the development of a patient-centered mHealth app to enhance self-management.
- This can improve resource access for families, particularly in rural areas.
