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Barriers to self-management of patients with adenomyosis: A qualitative study

Rong Huang¹, Xiaohan Li¹, Hui Jiang¹

¹Nursing Department, Shanghai First Maternity and Infant Hospital, School of Medicine, Tongji University, Shanghai, China.

|December 3, 2021

Abstract

Aim:

This study aims to explore the barriers to self-management of patients with adenomyosis.

Design:

Phenomenological qualitative methodology.

Methods:

Totally, 18 patients with diagnosis of adenomyosis participated in this study. We used purposive sampling for recruitment until data saturation. A qualitative research was conducted using in-depth interviews, which were tape recorded and transcribed verbatim. Colaizzi's method was used to analyse the contents of interviews.

Results:

This study presented important information about the barriers to self-management of patients with adenomyosis in China. Four themes were identified: "lack of disease knowledge," "challenges and dilemmas of daily life," "multidimensional negative emotions" and "personalized supporting requirements."

Conclusion:

The study provided new insights into the barriers to self-management of patients with adenomyosis, including physical, psychological, daily life and self-image problems, and the patients need emotional and social support, which recommended that professionals should provide authoritative health education and multiple support.

Keywords:

Chinese women adenomyosis nursing qualitative research self-management

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