Guideline registries and libraries: a mixed-methods approach identified issues to be addressed with content
S Twaddle1, E Harrow1, D Service2
1Guidelines International Network (GIN), c/o J & H Mitchell WS, 51 Atholl Road, Pitlochry, Scotland, PH16 5BU.
Journal of Clinical Epidemiology
|December 7, 2021
Summary
Guideline developers desire a comprehensive, searchable, and up-to-date library for clinical practice guidelines. Key challenges include balancing comprehensiveness with ease of use and clearly defining the purpose of guideline repositories.
Area of Science:
- Health Services Research
- Clinical Practice Guidelines
- Information Science
Background:
- Effective clinical practice guidelines (CPGs) are crucial for evidence-based healthcare.
- A centralized, accessible repository for CPGs and guidelines under development is needed.
- The Guidelines International Network (GIN) community seeks to define optimal features for such resources.
Purpose of the Study:
- To identify desirable features for a guidelines library and a registry of guidelines in development.
- To understand the perspectives of guideline developers and endorsers on existing resources.
Main Methods:
- Explorative mixed-methods study design.
- Scoping activities and semi-structured interviews were conducted.
- Participants included guideline developers and endorsers from nine GIN member organizations.
Main Results:
- Desirable features for a guidelines library include comprehensiveness, a single information source, inclusion of related materials, being up-to-date, searchability, and ease of use.
- No current library fully meets these criteria.
- Challenges identified include balancing comprehensiveness with usability and defining the scope (e.g., quality, national focus).
Conclusions:
- Tension exists between comprehensiveness and ease of use in guideline repositories.
- Limited uptake, reporting of guideline quality, and clarity on purpose are ongoing issues for the guideline community.
- Further development is needed to optimize guideline libraries and registries.
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