Personalized communication with parents of children born at less than 25 weeks: Moving from doctor-driven to parent-personalized discussions
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Updated: Oct 10, 2025

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
Published on: January 12, 2018
Marlyse F Haward1, Antoine Payot2, Chris Feudtner3
1Department of Pediatrics, Children's Hospital at Montefiore, Albert Einstein College of Medicine, Bronx, NY, USA.
Insights
Effective communication is vital in neonatal care, especially for extremely preterm infants. Personalized, parent-centered approaches during antenatal, intensive care, and end-of-life phases foster trust and shared decision-making.
Area of Science:
- Neonatal Medicine
- Clinical Communication
- Bioethics
Background:
- Parental communication is crucial in neonatal care, particularly for extremely preterm infants (<25 weeks gestation).
- High mortality and morbidity rates in this population complicate communication strategies.
- Existing guidelines often focus narrowly on prenatal consultations, neglecting other critical care phases.
Purpose of the Study:
- To present a comprehensive framework for personalized, parent-centered communication in neonatal care.
- To address communication across antenatal, neonatal intensive care unit (NICU) hospitalization, and end-of-life phases.
- To advocate for adaptive communication strategies that respect parental heterogeneity.
Main Methods:
- Review of existing literature and clinical practices in neonatal communication.
- Development of a conceptual model for personalized and parent-centered communication.
- Emphasis on clinician self-reflection and practical implementation strategies.
Main Results:
- A 'one-size-fits-all' communication model is insufficient for building effective parent-clinician partnerships.
- Personalized communication, adapted to parental needs, is achievable and essential.
- Standardized yet personalized approaches enhance trust and facilitate shared decision-making.
Conclusions:
- Effective neonatal communication requires a shift from standardized information delivery to personalized, parent-centered engagement.
- Implementing adaptive communication strategies across all care phases is key to fostering strong clinician-parent partnerships.
- Clinician self-reflection and structured approaches are foundational for successful personalized communication in neonatal care.
Abstract:
Communication with parents is an essential component of neonatal care. For extremely preterm infants born at less than 25 weeks, this process is complicated by the substantial risk of mortality or major morbidity. For some babies with specific prognostic factors, the majority die. Although many of these deaths occur after admission to the intensive care unit, position statements have focused on communication during the prenatal consultation. This review takes a more comprehensive approach and covers personalized and parent-centered communication in the clinical setting during three distinct yet inter-related phases: the antenatal consultation, the neonatal intensive care hospitalization, and the dying process (when this happens). We advocate that a 'one-size-fits-all' communication model focused on standardizing information does not lead to partnerships. It is possible to standardize personalized approaches that recognize and adapt to parental heterogeneity. This can help clinicians and parents build effective partnerships of trust and affective support to engage in personalized decision-making. These practices begin with self-reflection on the part of the clinician and continue with practical frameworks and stepwise approaches supporting personalization and parent-centered communication.
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