Personalized communication with parents of children born at less than 25 weeks: Moving from doctor-driven to

Marlyse F Haward1, Antoine Payot2, Chris Feudtner3

  • 1Department of Pediatrics, Children's Hospital at Montefiore, Albert Einstein College of Medicine, Bronx, NY, USA.

Seminars in Perinatology
|December 11, 2021
PubMed

Insights

Effective communication is vital in neonatal care, especially for extremely preterm infants. Personalized, parent-centered approaches during antenatal, intensive care, and end-of-life phases foster trust and shared decision-making.

Area of Science:

  • Neonatal Medicine
  • Clinical Communication
  • Bioethics

Background:

  • Parental communication is crucial in neonatal care, particularly for extremely preterm infants (<25 weeks gestation).
  • High mortality and morbidity rates in this population complicate communication strategies.
  • Existing guidelines often focus narrowly on prenatal consultations, neglecting other critical care phases.

Purpose of the Study:

  • To present a comprehensive framework for personalized, parent-centered communication in neonatal care.
  • To address communication across antenatal, neonatal intensive care unit (NICU) hospitalization, and end-of-life phases.
  • To advocate for adaptive communication strategies that respect parental heterogeneity.

Main Methods:

  • Review of existing literature and clinical practices in neonatal communication.
  • Development of a conceptual model for personalized and parent-centered communication.
  • Emphasis on clinician self-reflection and practical implementation strategies.

Main Results:

  • A 'one-size-fits-all' communication model is insufficient for building effective parent-clinician partnerships.
  • Personalized communication, adapted to parental needs, is achievable and essential.
  • Standardized yet personalized approaches enhance trust and facilitate shared decision-making.

Conclusions:

  • Effective neonatal communication requires a shift from standardized information delivery to personalized, parent-centered engagement.
  • Implementing adaptive communication strategies across all care phases is key to fostering strong clinician-parent partnerships.
  • Clinician self-reflection and structured approaches are foundational for successful personalized communication in neonatal care.

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