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International data governance for neuroscience.

Damian O Eke1, Amy Bernard2, Jan G Bjaalie3

  • 1Centre for Computing and Social Responsibility, De Montfort University, Leicester, UK; Human Brain Project.

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Summary

Navigating international neuroscience data sharing requires a global data governance framework to address diverse ethical and legal policies. This framework promotes open science and collaboration, balancing data protection with research needs.

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Area of Science:

  • Neuroscience
  • Data Science
  • Bioethics

Background:

  • Neuroscience projects are growing in scale and crossing international borders.
  • Existing data governance frameworks are often limited by geopolitical boundaries, creating challenges for international data sharing.

Purpose of the Study:

  • To propose principles and operational considerations for international neuroscience data governance.
  • To highlight challenges and opportunities in establishing a global brain data ecosystem.
  • To balance data protection with open science principles to foster international collaboration.

Main Methods:

  • Review of existing ethical principles, laws, regulations, and policies for data sharing.
  • Proposal of a framework for international data governance in neuroscience.
  • Consideration of federated constructs like the International Brain Initiative (IBI).

Main Results:

  • Identification of disparate policies and geopolitical constraints on neuroscience data governance.
  • Proposal of a balanced approach to data governance that supports both data protection and open science.
  • Highlighting of gaps, challenges, and opportunities within the global brain data ecosystem.

Conclusions:

  • An international data governance framework is essential for navigating complex global policies in neuroscience.
  • Implementing such a framework can facilitate international collaboration and advance open science in brain research.
  • Federated constructs are key to promoting a cohesive global brain data ecosystem.