Patient-Reported Outcomes in Children With Chronic Kidney Disease

Area of Science:

• Nephrology
• Pediatrics
• Health Outcomes Research

Background:

• Patient-reported outcomes (PROs) capture patient perspectives on health, distinct from clinician assessments.
• PROs are crucial for understanding the daily experiences of children with chronic kidney disease (CKD).
• PROs address a gap in optimizing health and well-being for pediatric CKD populations.

Purpose of the Study:

• To review the development and implementation of PROs for children with CKD.
• To identify knowledge gaps in clinical and research applications of PROs for pediatric CKD.
• To highlight future directions and challenges in PRO utilization for this population.

Main Methods:

• Literature review of PRO development.
• Analysis of PRO implementation strategies in pediatric CKD.
• Synthesis of current challenges and future research avenues.

Main Results:

• PROs provide unique insights into the lived experiences of children with CKD.
• Existing PROs may not fully capture all relevant domains for pediatric CKD.
• Knowledge gaps exist in the widespread clinical and research application of PROs.

Conclusions:

• PROs are essential for comprehensive care and research in pediatric CKD.
• Further research is needed to refine PRO development and implementation for children with CKD.
• Addressing implementation challenges is key to maximizing the benefits of PROs in pediatric nephrology.