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Transitioning from paediatric to adult rheumatological healthcare: English summary of the Japanese Transition Support
Masaaki Mori1, Shinji Akioka2, Toru Igarashi3
1Department of Lifetime Clinical Immunology, Graduate School of Medical and Dental Sciences, Tokyo Medical and Dental University, Tokyo, Japan.
Insights
This study introduces a guide for adult rheumatologists caring for patients transitioning from pediatric care. It addresses key clinical questions for improved transitional support in chronic rheumatic diseases.
Area of Science:
- Rheumatology
- Pediatrics
- Healthcare Transition
Background:
- International attention is focused on healthcare transitions for pediatric patients aging into adult care.
- Approximately 1000 Japanese patients with childhood-onset chronic rheumatic diseases transition to adult care annually.
- Effective transition requires collaboration between pediatric and adult healthcare providers.
Purpose of the Study:
- To propose a guide for adult rheumatologists managing patients transitioning from pediatric care.
- To provide essential knowledge for physicians in adult internal medicine and orthopaedics involved in transitional care.
- To inform policy and strategies for optimal transitional care outcomes in rheumatic diseases.
Main Methods:
- A guide was developed with input from the Japan College of Rheumatology and the Pediatric Rheumatology Association of Japan.
- The guide structure involves adult caregivers posing clinical questions and pediatric caregivers compiling transition plans.
- Consultation with professional organizations ensured expert review and approval.
Main Results:
- The guide focuses on common transitional support features across various rheumatic diseases.
- It aims to equip non-pediatric rheumatologists with knowledge for managing transitioned patients.
- The outcome is a collaborative framework for addressing transitional care needs.
Conclusions:
- The developed guide offers a structured approach to transitional care for rheumatic diseases.
- It facilitates knowledge transfer and collaboration between pediatric and adult healthcare teams.
- Implementation of this guide can enhance care continuity and patient outcomes during healthcare transitions.
Abstract:
Issues related to transitioning from paediatric to adult healthcare are currently receiving international attention. In Japan, 1000 patients with childhood-onset chronic rheumatological diseases reach adulthood every year and require transition from care by paediatric to care by adult rheumatologists. Here, we propose a guide for the latter, wherein the adult caregiver poses the clinical questions about transitional support that they need to have answered, and the paediatric caregiver mainly compiles the plans for the transition. To formulate the guide, we sought comments from both the Japan College of Rheumatology and the Pediatric Rheumatology Association of Japan and obtained their approval. Here, we present the outcome of this consultation in the form of a Guide for Supporting Transitional Care, aiming to provide essential knowledge to physicians in the fields of adult internal medicine and orthopaedics who may be involved in treating patients with rheumatic disease during the transition from paediatric to adult care. The features of transitional support that are common for patients with various different rheumatic diseases are presented in this guide, with the aim of informing policy and strategies to deliver optimal outcomes in transitional care by non-paediatric rheumatologists.
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