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The parental experience and perceptions of blenderized tube feeding for children with medical complexity

Joanna Soscia1,2,3, Sherri Adams1,2,3, Eyal Cohen1,3,4

  • 1Division of Paediatric Medicine, Department of Paediatrics, The Hospital for Sick Children, Toronto, Ontario, Canada.

Paediatrics & Child Health
|January 6, 2022
PubMed

Insights

Blenderized tube feeding (BTF) empowers parents of children with medical complexity, enhancing child wellbeing and normalizing family life. Despite being time-consuming, parents are satisfied and plan to continue BTF.

Area of Science:

  • Pediatric Health
  • Nutrition Science
  • Family Caregiving

Background:

  • Enteral tube feeding is common for children with medical complexity.
  • Enteral feeding can present psychosocial challenges for families.
  • Blenderized tube feeding (BTF) involves pureed food via a feeding tube, with limited research on parental experiences.

Purpose of the Study:

  • To explore the lived experiences of parents providing blenderized tube feeding (BTF) to their children.
  • To understand the psychosocial implications of BTF from the parent's perspective.

Main Methods:

  • Qualitative grounded theory analysis.
  • Semi-structured interviews with 10 parents providing at least 50% of their child's diet via BTF.
  • Constant comparative analysis of transcribed interviews until thematic saturation.

Main Results:

  • Parents reported BTF positively impacted their child's health and wellbeing.
  • BTF was perceived as a tool for parental self-empowerment and family normalization.
  • Despite increased time commitment compared to formula, parents were satisfied and intended to continue BTF.

Conclusions:

  • Blenderized tube feeding (BTF) can enhance the tube feeding experience for children with medical complexity.
  • BTF may mitigate negative psychosocial effects of enteral feeding, offering parents a sense of normalcy and control.
Abstract

Keywords:
Blended dietBlenderized tube feedingChildren with medical complexityEnteral feeding

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