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Published on: December 13, 2017
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Exploring essential tremor: Results from a large online survey
Harsh V Gupta1, Rajesh Pahwa2, Phaedra Dowell3
1University of Kansas Medical Center, 3901 Rainbow Blvd, Kansas City, KS 66160, United States.
Clinical Parkinsonism & Related Disorders
|January 6, 2022
Summary
Essential tremor (ET) diagnosis and treatment require improvement. Many patients face delays in diagnosis and ineffective treatments, highlighting the need for better physician and patient awareness and more tolerable therapeutic options.
Area of Science:
- Neurology
- Movement Disorders
- Patient-Reported Outcomes
Background:
- Essential tremor (ET) is a prevalent movement disorder often subject to misdiagnosis.
- Effective diagnosis and treatment are crucial for improving patient care in ET.
Purpose of the Study:
- To investigate diagnosis, symptoms, and treatment patterns in individuals with Essential Tremor (ET).
- To identify challenges in the diagnostic and treatment pathways for ET patients.
Main Methods:
- An online survey was distributed to individuals in the International Essential Tremor Foundation database.
- The survey collected data on symptoms, diagnostic experiences, and current treatments for ET.
Main Results:
- A significant proportion of ET patients (45%) saw multiple physicians before diagnosis, with neurologists being the most common diagnosticians (65%).
- Hand/arm tremor (95%) impacted daily activities like writing and eating. Beta-blockers were common treatments (42%), but many experienced no benefit (33%) or discontinued due to side effects (35%).
- A substantial number of patients (33%) had never received treatment, and 28% did not see a physician for their ET.
Conclusions:
- The study underscores the need for more effective and tolerable ET treatments.
- Increased awareness among healthcare providers and patients regarding ET diagnosis and management is essential.
- Addressing diagnostic delays and treatment gaps is critical for improving the quality of life for ET patients.
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