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A Norm-Creative Method for Co-constructing Personas With Children With Disabilities: Multiphase Design Study.

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This study introduces a norm-creative, participatory persona generation method to improve inclusive design for children with disabilities in health games. The approach enhances co-creation and communication, leading to better representation in research.

Keywords:
childrenco-produced caredisabilityhealth carenorm-criticalparticipatory designpersonas

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Area of Science:

  • Human-Computer Interaction
  • Participatory Design
  • Inclusive Design

Background:

  • Child participation in healthcare is increasing, necessitating tools for co-production of care.
  • Designing for children with disabilities presents unique challenges in participatory research.
  • Norm-creative and participatory approaches offer potential for effective design solutions for this group.

Purpose of the Study:

  • To integrate norm-creative and participatory design into persona generation for children with disabilities.
  • To develop a method for designing health games tailored to children with disabilities.
  • To enhance the involvement of children with disabilities in the design process.

Main Methods:

  • Developed an iterative, image-based co-construction method using workshops.
  • Involved 16 children with disabilities in persona generation through character and scenario co-creation.
  • Validated personas with children without disabilities, a young adult with a disability, and a rehabilitation professional.

Main Results:

  • Generated an effective, iterative co-construction method for persona generation.
  • Demonstrated success in flexible co-construction and communication within a games for health context.
  • Results aligned with social model perspectives, highlighting participation levels and salutogenic factors.

Conclusions:

  • The developed method promotes inclusiveness and representation for children with disabilities in research and design.
  • Effective use requires norm-critical awareness and skilled facilitation.
  • Further research should explore applying this method to similar contexts and user groups.