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Published on: January 7, 2020
Perinatal palliative care
Ana Martín-Ancel1, Alejandro Pérez-Muñuzuri2, Noelia González-Pacheco3
1Servicio de Neonatología, Hospital Sant Joan de Déu, Esplugues de Llobregat, Barcelona, Spain.
Insights
Perinatal palliative care addresses complex needs for infants and families facing life-limiting conditions. Developing structured programs in hospitals is crucial for ensuring high-quality support and improving quality of life.
Area of Science:
- Neonatology
- Pediatrics
- Palliative Care Medicine
Background:
- Perinatal palliative care is essential for infants with life-threatening conditions.
- This care encompasses physical, spiritual, emotional, and social needs of the infant and family.
- Current care models require enhancement in tertiary settings.
Purpose of the Study:
- To highlight the importance of structured perinatal palliative care programs.
- To emphasize the need for improved access to high-quality palliative care for neonates.
- To advocate for the development of protocols in specialized hospitals.
Main Methods:
- Review of existing perinatal palliative care models.
- Analysis of needs for infants with life-limiting conditions.
- Identification of requirements for program development in tertiary centers.
Main Results:
- Perinatal palliative care requires an interdisciplinary team approach.
- Care extends from diagnosis through bereavement.
- Structured programs and protocols are needed in specialized hospitals.
Conclusions:
- Enhanced structured programs are necessary in tertiary hospitals for complex neonatal pathologies.
- Professional training is fundamental for effective perinatal palliative care delivery.
- Improving access to quality perinatal palliative care is vital for vulnerable infants and their families.
Abstract:
Perinatal Palliative Care is a model of care designed to prevent and treat the physical, spiritual, emotional, and social needs of fetuses and newborn infants with life-threatening or life-limiting conditions. The care extends to the infant's family. It is delivered by an interdisciplinary team to improve the quality of life from the time of diagnosis (possibly in utero) into death and bereavement (days, months or years later). To guarantee the access of this vulnerable population to high quality palliative care, structured programs and protocols need to be further developed in tertiary hospitals that treat highly complex obstetric and neonatal pathologies. Basic training is required for all the professionals involved.
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