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Author Spotlight: Methodologies and Advancements of Chronic Pain Management Research
Published on: January 5, 2024
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Parents' experiences with pediatric chronic pain.
Anne Le1, Bruce R Dick2, Jude Spiers1
1Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada.
Canadian Journal of Pain = Revue Canadienne De La Douleur
|January 10, 2022
Summary
Parents experience significant emotional and financial burdens when their child has chronic pain. Social support is crucial for managing the impact on the entire family and improving well-being.
Area of Science:
- Pediatric healthcare
- Psychology
- Family studies
Background:
- Pediatric chronic pain impacts 15%-39% of children, affecting their functioning and quality of life.
- Parents of children with chronic pain also experience significant challenges.
- Qualitative research on parental experiences in pediatric chronic pain is limited.
Purpose of the Study:
- To explore the lived experiences of parents caring for children with chronic pain.
- To understand the multifaceted impact of pediatric chronic pain on families.
- To identify key factors influencing parental well-being in this context.
Main Methods:
- Qualitative descriptive study utilizing semistructured interviews.
- Involved thirteen parents from a pediatric chronic pain clinic.
- Employed concurrent data collection and analysis with three phases: coding, categorizing, and theme development.
Main Results:
- Parents undergo an emotional journey, including challenges in diagnosis and pain management.
- Pediatric chronic pain significantly affects the entire family system, requiring accommodations and incurring financial costs.
- Strong social support networks are vital for providing assistance and flexibility to families.
Conclusions:
- This study enhances understanding of how pediatric chronic pain affects parents.
- Findings can inform the development of more effective treatments and educational resources.
- Interventions should aim to improve the psychological, physical, and social well-being of both children and their families.
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