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The Psychosocial Burden of Families with Childhood Blood Cancer

Florencia Borrescio-Higa1, Nieves Valdés1

  • 1Business School and GobLab UAI, Universidad Adolfo Ibáñez, Santiago 7941169, Chile.

International Journal of Environmental Research and Public Health
|January 11, 2022
PubMed

Insights

Childhood cancer significantly impacts families in Chile, causing distress and disrupting daily life. This study highlights the need for interventions to support patients, siblings, and parents coping with these challenges.

Area of Science:

  • Pediatric Oncology
  • Psychosocial Oncology
  • Family Studies

Background:

  • Childhood cancer is a leading cause of death in children.
  • Pediatric leukemias are the most common cancer diagnoses in Chile.
  • Childhood cancer imposes significant psychosocial burdens on patients and families.

Purpose of the Study:

  • To examine the psychosocial experiences of families with children diagnosed with blood-related cancer in Chile.
  • To provide a comprehensive overview of the family's journey, including patients, caregivers, and siblings.
  • To identify key areas of distress and disruption within these families.

Main Methods:

  • A qualitative study involving 90 families of children with blood-related cancer in Chile.
  • Focus on the experiences of pediatric patients, their caregivers, and siblings.
  • Analysis of psychosocial impacts including emotional, social, and economic factors.

Main Results:

  • Most families reported negative impacts post-diagnosis, including disrupted family dynamics.
  • Patients experienced negative emotions like depression and irritability; social lives were affected.
  • Sibling relationships, caregiver partnerships, and economic stability were negatively impacted.
  • Over half of families relocated due to diagnosis or treatment.

Conclusions:

  • Childhood cancer profoundly affects the psychosocial well-being of the entire family unit.
  • Interventions are crucial to help patients, siblings, and parents manage distress.
  • Promoting resilience and well-being is essential for families navigating pediatric cancer.

Keywords:
caregiverchildhood cancerpsychosocial costsiblingswell-being

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