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Published on: February 28, 2012
Patients' openness to discussing implantable cardioverter defibrillator deactivation at end of life: a
Kyoung Suk Lee1, Oonjee Oh1, Jennifer Miller2
1College of Nursing, Seoul National University, 103 Daehak-ro, Jong-ro, Seoul 03080, South Korea.
Insights
Many implantable cardioverter defibrillator (ICD) patients are open to discussing end-of-life deactivation. Factors like living situation, comorbidities, and prior discussions influence openness, highlighting areas for improved patient-clinician communication.
Area of Science:
- Cardiology
- Medical Ethics
- Patient-Physician Communication
Background:
- Discussions regarding end-of-life deactivation of implantable cardioverter defibrillators (ICDs) are recommended but rarely occur.
- Understanding patient willingness to discuss ICD deactivation is crucial for shared decision-making.
Purpose of the Study:
- To explore factors associated with patients' openness to discussing end-of-life ICD deactivation with clinicians.
Main Methods:
- A cross-sectional study involving 293 patients with ICDs in the USA, Australia, and South Korea.
- Patients were categorized as open or resistant to discussing end-of-life deactivation.
- Multivariable logistic regression analyzed factors related to openness.
Main Results:
- 57.7% of patients were open to discussing ICD deactivation.
- Openness was associated with living with someone, absence of severe comorbidities (cancer/CKD), greater ICD knowledge, and prior end-of-life discussions.
Conclusions:
- Half of ICD recipients are reluctant to discuss deactivation.
- Living arrangements and comorbidities are unmodifiable factors; ICD knowledge and prior discussions are modifiable.
- Assessing patient readiness for shared discussions on deactivation is essential.
Aims:
It is recommended that patients and clinicians discuss end-of-life deactivation of their implantable cardioverter defibrillator (ICD) prior to device implantation and throughout the illness trajectory to facilitate shared decision-making. However, such discussions rarely occur, and little is known about patients' openness to this discussion. The purpose of this study was to explore factors associated with patients' openness to discussing end-of-life ICD deactivation with clinicians.
Methods And Results:
This cross-sectional study recruited 293 patients with an ICD from outpatient clinics in the USA, Australia, and South Korea. Patients were classified into an open or resistant group based on their desire to discuss device deactivation at end of life with clinicians. Multivariable logistic regression was used to explore factors related to patients' openness to this discussion.About half of the participants (57.7%) were open to discussing such issues with their clinicians. Factors related to patients' openness to discussing device deactivation at end of life were living with someone, not having severe comorbid conditions (cancer and/or chronic kidney disease), greater ICD knowledge, and more experience discussing end-of-life issues with clinicians (odds ratio: 0.479, 0.382, 1.172, 1.332, respectively).
Conclusion:
Approximately half of the ICD recipients were reluctant to discuss device deactivation at end of life with clinicians. Unmodifiable factors were their living arrangement and severe comorbidity. ICD knowledge and prior experience discussing end-of-life issues were potentially modifiable factors in the future. These factors should be addressed when assessing patients' readiness for a shared discussion about device deactivation at end of life.
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