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Parental knowledge about familial Mediterranean fever: a cross-sectional study

Deniz Gezgin Yıldırım1, Sevcan A Bakkaloğlu1, A Şebnem Soysal-Acar2

  • 1Division of Pediatric Rheumatology, Gazi University Faculty of Medicine, Ankara, Turkey.

The Turkish Journal of Pediatrics
|January 13, 2022
PubMed

Insights

Parental knowledge about familial Mediterranean fever (FMF) is insufficient, especially regarding disease risks and treatments. Improved educational programs are crucial for parents of pediatric FMF patients to enhance understanding of FMF management.

Area of Science:

  • Pediatric Rheumatology
  • Genetics
  • Public Health

Background:

  • Familial Mediterranean Fever (FMF) requires lifelong management, with parents needing comprehensive understanding of its course, complications, treatments, and side effects.
  • Assessing parental knowledge and information-seeking behaviors is vital for effective pediatric FMF patient care.

Purpose of the Study:

  • To evaluate the knowledge level of parents regarding pediatric Familial Mediterranean Fever (FMF).
  • To identify how parents obtain scientific information about FMF.

Main Methods:

  • A cross-sectional study involving 171 pediatric FMF patients and their parents.
  • Parents completed a three-part questionnaire covering socio-demographics, FMF knowledge/perceptions, and information sources.

Main Results:

  • While 90.1% recognized colchicine's efficacy, only 39.2% knew FMF attacks pose no vital risk.
  • Physicians were the primary information source (98.8%), followed by websites (47.9%).
  • Higher knowledge scores correlated with anti-interleukin-1 therapy use and higher parental education levels.

Conclusions:

  • Parental knowledge regarding pediatric FMF is generally inadequate.
  • Parents of children with more severe FMF (requiring anti-interleukin-1 therapy) demonstrated higher knowledge.
  • Immediate and ongoing educational initiatives for parents, utilizing diverse resources, are recommended post-diagnosis.
Abstract

Keywords:
childhoodfamilial Mediterranean feverparental knowledgepediatric rheumatology

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