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Willingness to donate organs - an anonymised survey in the emergency department
Ksenija Slankamenac1, Elijah Temperli1, Dagmar I Keller1
1Emergency Department, University Hospital Zurich, Switzerland.
Insights
Only 20% of Swiss emergency department patients surveyed had an organ donor card or were registered. Most were willing to donate, but many lacked information or time to decide on organ donation.
Area of Science:
- Medical research
- Public health
Background:
- Switzerland faces a shortage of donor organs, with more patients needing transplants than available donors.
- In 2020, 2124 patients were on the waiting list, and 43 organs were imported, yet demand remained unmet.
- A proposed initiative suggests opt-out organ donation for all Swiss residents.
Purpose of the Study:
- To assess organ donor card status and registration in the Swiss National Organ Donor Registry (NODR).
- To determine willingness to donate organs among patients in a tertiary care emergency department (ED).
- To identify factors associated with being a registered organ donor.
Main Methods:
- A prospective, anonymized survey of 307 ED patients in Switzerland.
- Patients completed a self-administered questionnaire regarding organ donation status and willingness.
- Descriptive and logistic regression analyses were performed to identify associated factors.
Main Results:
- 62% of surveyed patients (20.2%) were registered organ donors or held donor cards.
- The vast majority (85.5%) of registered donors were willing to donate organs.
- Lack of knowledge (34.3%) and insufficient time (20.8%) were primary reasons for non-registration; past blood donation, prior transplant, and university education were associated with donor status.
Conclusions:
- A significant gap exists in organ donor registration among Swiss ED patients, with only one in five being registered.
- Willingness to donate is high among registered donors, but many non-registered individuals cite lack of information or time.
- Enhanced public information campaigns are crucial to increase organ donation rates and address the organ shortage.
Background:
In Switzerland, 519 patients received an organ in 2020. In total, 2124 patients were on the donor organ waiting list in 2020. There are many more people who need an organ than people willing to donate one. Therefore, 43 organs had to be imported from outside of Switzerland and this number was still not sufficient. This disproportion of patients needing an organ and available donor organs is the subject of ongoing discussion. A solution to this problem might be provided by a popular initiative proposing that every single resident of Switzerland should be an organ donor, unless a person explicitly rejects organ donation. We surveyed the patients in a single tertiary care emergency department (ED) to determine whether they had an organ donor card or were registered in the Swiss National Organ Donor Registry (NODR), the frequency of willingness to donate organs and which factors were associated with being an organ donor.
Methods:
In a prospective anonymised survey during July 2019, we enrolled patients who visited a Swiss tertiary care ED, during one week from 8:00 to 18:00, two weeks from 14:00 to 23:00 and one week from 23:00 to 8:00. The patients completed a written, standardised and self-administrated questionnaire during the waiting time in the ED. Descriptive, uni- and multivariable logistic regression analysis were performed.
Results:
We enrolled 307 ED patients, of whom 62 (20.2%) were donor card holders or were registered in the Swiss NODR. Of these, 53 (85.5%) would be willing to donate organs. The remaining nine (14.5%) were not willed to donate an organ; the reasons for this were very heterogeneous. In contrast, the two leading reasons for willingness to donate organs were: to help after death (94.3%) and to free relatives from the task of making the decision (43.4%). From the 245 (79.8%) participants who did not have an organ donor card or were not registered, 84 respondents (34.3%) lacked knowledge of this topic, 65 (26.5%) had not yet thought about the topic and 51 (20.8%) had not yet had time to take care of this issue. Blood donation (odds ratio [OR] 2.1, 95% confidence interval [CI] 1.1-3.9; p = 0.018) or receiving a transplant in the past (OR 6.1, 95% CI 1.3-29.1; p = 0.023) and having a university degree (OR 1.8, 95% CI 1.0-3.2; p = 0.049) were factors associated with being an organ donor card holder.
Conclusions:
Only one in five ED patients had a fully completed organ donor card or were registered in the Swiss NODR. Of these, the great majority were willing to donate organs. Most of the ED patients who did not have an organ donor card or were not registered in the NODR lacked knowledge and information about the topic, had not yet thought about it or had not had time to deal with this issue. Factors such as a positive history of blood donation, organ transplantation in the past or having a university degree were associated with having an organ donor card. In order to increase the willingness to donate organs in the future, it is of immense importance to provide better information and more details and knowledge about this important topic.
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