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Technology Utilization in Black Adolescents with Type 1 Diabetes: Exploring the Decision-Making Process
Shana R Mencher1, Stuart A Weinzimer1,2, Laura M Nally1
1Department of Pediatrics, Division of Endocrinology, Yale University School of Medicine, New Haven, Connecticut, USA.
Black adolescents with type 1 diabetes (T1D) face unique challenges in using diabetes devices (DDs). Cultural factors, identity, and medical mistrust influence their decisions, highlighting the need for equitable care.
Area of Science:
- Endocrinology and Metabolism
- Adolescent Health
- Health Disparities
Background:
- Significant disparities exist in diabetes device (DD) use among Black adolescents with type 1 diabetes (T1D).
- Understanding the factors influencing DD adoption in this population is crucial for improving health outcomes.
Purpose of the Study:
- To explore the decision-making processes of Black adolescents with T1D and their parents regarding DD use.
- To identify personal, familial, and cultural beliefs impacting DD adoption among Black adolescents with T1D.
Main Methods:
- Qualitative study involving 19 Black adolescents with T1D and 17 parents.
- Individual, semistructured interviews were conducted and analyzed thematically.
- Data were collected until thematic saturation was achieved.
Main Results:
- Themes included the intersection of identity and T1D, the complexities of DD decision-making, and reasons for differential uptake.
- Adolescents reported stigma due to lack of relatable peers, device visibility, and alarms.
- Cultural traditions, familial factors, medical mistrust, and lack of familiarity with T1D were identified as barriers and facilitators.
Conclusions:
- Decision-making regarding DDs is influenced by a complex interplay of individual, familial, and cultural factors.
- Addressing stigma, building trust, and increasing familiarity with T1D and DDs are essential for improving equity.
- Further research is needed to guide interventions aimed at enhancing DD use and glycemic outcomes in Black adolescents with T1D.
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