Addressing Suffering in Infants and Young Children Using the Concept of Suffering Pluralism
1The Royal Women's Hospital Melbourne, Locked Bag 300, Corner Grattan St & Flemington Rd, Parkville, Melbourne, 3052, Australia. Amir.Zayegh@thewomens.org.au.
Insights
Suffering in infants is poorly defined, causing medical conflicts. A new concept, suffering pluralism, offers a multidimensional view to improve infant care decisions.
Area of Science:
- Medical Ethics
- Pediatric Care
- Philosophy of Medicine
Background:
- Suffering is central to medical care but poorly defined in infants and nonverbal children.
- Epistemic and normative challenges complicate the detection, treatment, and best interest determination of infant suffering.
- Disagreement on definitions fuels mistrust and allows biases to influence medical decisions for infants.
Purpose of the Study:
- To propose a novel concept, suffering pluralism, for a multidimensional understanding of infant suffering.
- To address the limitations in defining and addressing infant suffering in clinical settings.
- To enhance communication and reduce conflict in medical decision-making for unwell infants.
Main Methods:
- Conceptual analysis and philosophical argument.
- Development of the suffering pluralism framework.
- Exploration of subjective and objective components of infant well-being.
Main Results:
- Suffering pluralism is introduced as a multidimensional view encompassing subjective and objective aspects of infant suffering.
- The concept provides a more inclusive framework for understanding infant suffering.
- It aims to improve the weighing of subjective and objective components of well-being.
Conclusions:
- Suffering pluralism offers a novel approach to defining and addressing infant suffering.
- This framework can enhance clarity, consistency, and communication in medical decision-making for infants.
- Further exploration of critiques and limitations of suffering pluralism is warranted.
Abstract:
Despite the central place of suffering in medical care, suffering in infants and nonverbal children remains poorly defined. There are epistemic problems in the detection and treatment of suffering in infants and normative problems in determining what is in their best interests. A lack of agreement on definitions of infant suffering leads to misunderstanding, mistrust, and even conflict amongst clinicians and parents. It also allows biases around intensive care and disability to (mostly unconsciously) affect medical decision-making on behalf of infants. In this paper, I propose the concept of suffering pluralism, which is a novel multidimensional view of infant suffering based on subjective and objective components. The concept of suffering pluralism is more inclusive of the multiple ways in which infant suffering can occur. It acknowledges and defines a subjective component to infant suffering, while also focusing moral attention on objective well-being by describing it using the language of suffering. This concept allows us to better weigh up subjective and objective components of well-being. It also encourages clarity and consistency in claiming suffering, which is likely to improve communication and reduce conflict in medical decision-making for unwell infants and children. I will end by exploring possible critiques and limitations of this concept.
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