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Published on: June 23, 2023
Consensus on Triple Endoscopy Data Elements Preparatory to Development of an Aerodigestive Registry
Richard Paul Boesch1, Alessandro de Alarcon2, Joseph Piccione3
1Division of Pediatric Pulmonology, Department of Pediatrics and Adolescent Medicine, Mayo Clinic Children's Center, Rochester, Minnesota, U.S.A.
This study established essential data elements for aerodigestive triple endoscopy procedures. Standardized data collection will improve multicenter registries and clinical documentation for pediatric aerodigestive care.
Area of Science:
- Pediatric Gastroenterology
- Pediatric Pulmonology
- Pediatric Otolaryngology
- Digestive System Diseases
- Respiratory Tract Diseases
- Ear Diseases
Background:
- Triple endoscopy is a critical procedure in managing pediatric aerodigestive conditions.
- Standardization of data collection is needed for multicenter registries and comparative analysis.
- Current documentation practices lack uniformity, hindering research and quality improvement.
Purpose of the Study:
- To define essential data elements for aerodigestive triple endoscopy.
- To establish a foundation for a standardized multicenter registry.
- To create clear measurement definitions for consensus items.
Main Methods:
- A modified Delphi process involving 24 expert clinicians across pediatric otolaryngology, pulmonology, and gastroenterology.
- Six survey rounds were conducted to achieve consensus on data elements.
- Outside validation was performed at a national conference, with concordance measured against expert panel conclusions.
Main Results:
- 73 out of 167 proposed data elements reached consensus across six key domains.
- Measurement definitions were established for all consensus items, with classification systems for 11.
- High concordance (94.5% overall) was observed between expert consensus and the validation group.
Conclusions:
- This study successfully identified and defined crucial data elements for triple endoscopy.
- The developed list is practical for clinical use and provides a basis for a standardized registry.
- The findings will enhance the consistency of clinical documentation in aerodigestive care.
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