Related Experiment Video

Updated: Oct 4, 2025

A Battery of Motor Tests in a Neonatal Mouse Model of Cerebral Palsy
10:02

A Battery of Motor Tests in a Neonatal Mouse Model of Cerebral Palsy

Published on: November 3, 2016

24.7K

Decision Making for Infants With Neurologic Conditions

Charlotte Gerrity1, Samantha Farley2, Mary C Barks2

  • 112277Duke University School of Medicine, Durham, NC, USA.

Journal of Child Neurology
|February 8, 2022
PubMed

Insights

Pediatric neurologic disease care involves complex decisions. This study found that while parents often initiate value discussions, these conversations and their integration into infant care decisions are inconsistent, highlighting areas for improvement.

Area of Science:

  • Pediatric Neurology
  • Clinical Decision Making
  • Bioethics

Background:

  • High-stakes decisions are common for infants with neurologic conditions.
  • Understanding the decision-making process is crucial for optimizing care.

Purpose of the Study:

  • To characterize the decision-making process in family conferences for infants with neurologic conditions.
  • To identify key domains and the role of values exchange in these decisions.

Main Methods:

  • Longitudinal mixed methods study involving infants, parents, and clinicians.
  • Audio recording and directed content analysis of 68 family conferences.
  • Focus on treatment decisions and the exchange of medical and values-based information.

Main Results:

  • Four key domains identified: medical information exchange, values-based exchange, therapeutic partnership, and integration of values.
  • Parent-initiated values discussion occurred in 83% of relevant conferences.
  • Integration of family values into decisions occurred in approximately half of conferences, with one-third lacking values discussion.

Conclusions:

  • Opportunities exist to enhance interventions promoting values discussion in pediatric neurologic care.
  • Improving the integration of family values into infant care decisions is essential.
  • Strengthening the therapeutic partnership can optimize shared decision-making.

Keywords:
childrendisabilityethicsinfantneonatequality of life

More Related Videos

A Novel Experimental and Analytical Approach to the Multimodal Neural Decoding of Intent During Social Interaction in Freely-behaving Human Infants11:14

A Novel Experimental and Analytical Approach to the Multimodal Neural Decoding of Intent During Social Interaction in Freely-behaving Human Infants

Published on: October 4, 2015

11.1K
Event-related Potentials During Target-response Tasks to Study Cognitive Processes of Upper Limb Use in Children with Unilateral Cerebral Palsy08:26

Event-related Potentials During Target-response Tasks to Study Cognitive Processes of Upper Limb Use in Children with Unilateral Cerebral Palsy

Published on: January 11, 2016

12.3K

Related Concept Videos

Reason and Intuition01:37

Reason and Intuition

The human brain processes information for decision-making using one of two routes: an intuitive system and a rational system (Epstein, 1994; popularized by Kahneman, 2011 as System 1 and System 2, respectively). The intuitive system is quick, impulsive, and operates with minimal effort, relying on emotions or habits to provide cues for what to do next, while the rational system is logical, analytical, deliberate, and methodical. Research in neuropsychology suggests that the...
7.0K
Decision Making01:20

Decision Making

Decision-making is a fundamental cognitive process that involves evaluating alternatives and selecting among them. This process can range from simple choices, such as deciding what to wear, to complex decisions, like choosing a major in college or a career path. The complexity of the decision often dictates the approach we use, which can be broadly categorized into two types: automatic and controlled decision-making.
Automatic decision-making is fast, intuitive, and relies on gut feelings...
286
Factors Affecting Drug Response: Overview01:21

Factors Affecting Drug Response: Overview

When it comes to infants and young children, they are typically administered smaller doses of medication in comparison to adults. This is primarily because their organ functions still need to fully develop, meaning their bodies are not as efficient at metabolizing or eliminating drugs. Additionally, their blood-brain barrier is more permeable than in adults. As a result, high concentrations of drugs can easily penetrate the central nervous system (CNS), potentially leading to neurological...
2.5K
Critical Thinking II01:25

Critical Thinking II

Critical thinking is a cognitive process with several attributes. The attributes of critical thinking include the following:
3.5K
Drug Dosing: Infants and Children01:29

Drug Dosing: Infants and Children

Pediatric patient dosages diverge from adults due to disparities in body surface area, total body water, and extracellular fluid per kilogram of body weight. The dosing regimen considers the variations in pharmacokinetics and pharmacology across distinct age groups, encompassing preterm newborns, infants, young children, older children, and adolescents. Calculation of pediatric patient doses is predicated on determining body surface area, which exhibits a superior correlation with the child's...
21
Decision Making: Traditional Method01:14

Decision Making: Traditional Method

The process of hypothesis testing based on the traditional method includes calculating the critical value, testing the value of the test statistic using the sample data, and interpreting these values.
First, a specific claim about the population parameter is decided based on the research question and is stated in a simple form. Further, an opposing statement to this claim is also stated. These statements can act as null and alternative hypotheses, out of which a null hypothesis would be a...
4.3K