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Towards a better treatment of patients with vascular malformations: certified interdisciplinary centers are mandatory

Beatrix Cucuruz1, Michael Koller2, Ronja Pfleiderer3

  • 1University Clinic and Policlinic of Radiology at the Martin-Luther-Universität Halle-Wittenberg, Halle, Germany.

Zeitschrift Fur Evidenz, Fortbildung Und Qualitat Im Gesundheitswesen
|February 11, 2022
PubMed

Insights

Vascular anomalies, rare orphan diseases, require standardized care. Establishing certified interdisciplinary Vascular Anomalies Centers (VAC) with clear criteria can improve patient treatment and healthcare quality.

Area of Science:

  • Rare diseases
  • Vascular anomalies
  • Healthcare management

Background:

  • Vascular anomalies are rare orphan diseases affecting all age groups.
  • Conditions range from aesthetic concerns to life-threatening issues.
  • Current patient management faces significant challenges.

Purpose of the Study:

  • Outline problems in current vascular anomaly patient management.
  • Propose structural solutions for improved future patient treatment.
  • Define criteria for certified interdisciplinary Vascular Anomalies Centers (VAC).

Main Methods:

  • Multi-perspective author panel including key stakeholders.
  • Defined problem areas and potential solutions for vascular anomalies.
  • Developed quality indicators for VAC certification.

Main Results:

  • Lack of standardized nomenclature and evidence-based diagnostics/therapeutics.
  • Expert opinions often lead to disparate treatment recommendations.
  • Centralized, interdisciplinary VAC with agreed principles and quality indicators proposed as a solution.

Conclusions:

  • Need for comprehensive nomenclature and interdisciplinary treatment centers for vascular anomalies.
  • Increased scientific evidence and further education are crucial.
  • Certified VAC using evidence-based criteria will enhance healthcare quality in Germany.
Abstract

Keywords:
CertificationClassificationEvidence-based medicineEvidenzbasierte MedizinGefäßanomalienKlassifizierungOrphan diseaseSeltene ErkrankungVascular anomaliesZertifizierung

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