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Implementation of the BC Congenital Anomalies Surveillance System (BCCASS)
Yonabeth Nava de Escalante1, Aanu Abayomi2, Anders Erickson2
1Office of the Provincial Health Officer, Ministry of Health, Victoria, British Columbia, Canada. Yonabeth.Nava@gov.bc.ca.
Insights
The BC Congenital Anomalies Surveillance System (BCCASS) enhances monitoring of birth defects in British Columbia. This cost-effective system uses existing data to inform public health policy and preventive measures for congenital anomalies.
Area of Science:
- Public Health
- Epidemiology
- Biostatistics
Background:
- Congenital anomalies (CAs) contribute significantly to infant mortality and lifelong morbidity.
- Irregular surveillance of CAs in British Columbia (BC) has hindered effective public health interventions.
- The Public Health Agency of Canada funded the BC Congenital Anomalies Surveillance System (BCCASS) to address these surveillance gaps.
Purpose of the Study:
- To establish a robust, population-based surveillance system for congenital anomalies in BC.
- To leverage existing administrative data for comprehensive CA monitoring.
- To provide data for policy development, program planning, and evaluation of preventive strategies.
Main Methods:
- BCCASS is a population-based surveillance system utilizing existing administrative data (vital events, disease status, prescriptions, healthcare utilization).
- Algorithms are employed to identify specific CA diagnoses, with some requiring validation by a multi-stakeholder Provincial Advisory Committee.
- The system captures data on maternal residence, risk, and protective factors for association studies.
Main Results:
- BCCASS provides prevalence and historical trend data for 35 CAs in BC.
- The system enables association studies linking CAs to environmental hazards and cluster analysis.
- Data supports understanding the burden of CAs for informed public health decision-making.
Conclusions:
- BCCASS is a cost-effective and sustainable system for monitoring congenital anomalies in BC.
- The system is crucial for data-driven policy development and program planning.
- Strong stakeholder collaboration is essential for the successful implementation and future expansion of BCCASS.
Setting:
Congenital anomalies (CAs) can cause lifelong morbidity and accounted for 23.2% of infant deaths from 2003 to 2007. In British Columbia (BC), surveillance of CAs has been irregular since the early 2000s. To enhance CAs surveillance in BC, the Public Health Agency of Canada has provided funding for the implementation of the BC Congenital Anomalies Surveillance System (BCCASS).
Intervention:
BCCASS is a population-based surveillance system. The system leverages existing administrative data sources that capture information regarding vital events, disease status, drug prescription, and healthcare utilization. The system uses a series of algorithms to capture specific CAs diagnoses, some of which are further validated with the support of the Provincial Advisory Committee. This Advisory Committee is a multi-stakeholder coalition that includes the BC Office of the Provincial Health Officer, subject matter experts, data partners, users, and academia, and acts to provide support, expertise, and strategic guidance to BCCASS.
Outcomes:
Through BCCASS, prevalence and historical trends for 35 CAs in BC are available. Information pertaining to maternal place of residence, risk, and protective factors can be used for association studies such as links to environmental hazards and cluster analysis.
Implications:
BCCASS is a cost-effective and sustainable system that leverages existing data sources necessary to understand the overall burden of CAs across the BC population. This is fundamental to support data-driven decisions around policy development, program planning, and evaluation of preventive measures. Strong coalitions with stakeholders are instrumental to ensure successful implementation and expansion in the future.
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