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Children and adolescents' preferences for support when living with a dying parent - An integrative review
Emily Beatrice Bergersen1,2, Maria Larsson1, Cecilia Olsson3
1Department of Health Sciences, Faculty of Health, Science and Technology, Karlstad University, Karlstad, Sweden.
Aim:
To identify and synthesize the evidence base regarding children and adolescents' preferences for support when living with a dying parent.
Design:
Integrative literature review study.
Methods:
Searches were conducted in PubMed, CINAHL, PsycINFO, the Cochrane Library, Sociological Abstracts and Scopus, between 1 October 2019 and May 2021. Data were analysed and synthesized using integrative thematic analysis according to the analysis stages specified by Whittermore and Knafl.
Results:
Twenty-two articles were identified. Children and adolescents' preferences for support were described through one overarching theme, Striving to achieve control and balance, together with six subthemes; "Involvement in the sick parent's care and treatment"; "Wanting to be with the sick parent but needing respite"; "Information must be continuous and individually adapted"; "emotional and communicative support from parents and family members"; "professional, compassionate and informative support"; and "support in friendships and opportunities to maintain normality."
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