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Establishment of a Clinic-based Biorepository
Published on: May 29, 2017
Crowdsourcing as a means of fundraising for juvenile dermatomyositis
Nathaniel Goldman1,2, Bina Kassamali1, Neda Shahriari1
1Department of Dermatology, Brigham and Women's Hospital, Harvard Medical School, Boston, Massachusetts, USA.
Abstract:
This study used the crowdsourcing platform GoFundMe to analyze the financial hardships associated with treatment of juvenile dermatomyositis. Uncovered medical expenses, travel costs, and loss of income were all commonly cited reasons for fundraising, demonstrating high out-of-pocket costs and significant economic hardship associated with this disease, even among families with health insurance.
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