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Updated: Oct 2, 2025

Utility of Dissociated Intrinsic Hand Muscle Atrophy in the Diagnosis of Amyotrophic Lateral Sclerosis
Published on: March 4, 2014
Ethical aspects of the changing landscape for spinal muscular atrophy management in Australia
Ainsley J Newson1, Lisa Dive2, Julie Cini3
1BSc (Hons), LLB (Hons), PhD, Professor of Bioethics, Sydney Health Ethics, Sydney School of Public Health, Faculty of Medicine and Health, University of Sydney, NSW.
Background:
New methods of detecting and treating spinal muscular atrophy (SMA) are now available, and the Australian SMA landscape is rapidly changing. These various interventions can be increasingly complex to navigate for both healthcare professionals and at-risk families.
Objective:
The aim of this article is to describe how recent developments in SMA testing and treatment give rise to ethical considerations.
Discussion:
Ethical issues in SMA detection and treatment arise for both individual interventions and how they integrate. A patient-centred approach can help general practitioners to navigate these issues.
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