Internet-Based Information Behavior After Pregnancy Loss: Interview Study
Nazanin Andalibi1, Kristen Bowen2
1School of Information, University of Michigan, Ann Arbor, MI, United States.
JMIR Formative Research
|March 2, 2022
Summary
This study characterizes internet information-seeking behaviors after pregnancy loss, identifying key concerns around searchability, persistence, and assessability of information. Addressing these needs in online spaces can help reduce stigma and support diverse pregnancy experiences.
Area of Science:
- Information Science
- Reproductive Health
- Human-Computer Interaction
Background:
- Information behavior is crucial for individuals facing disruption or stigma.
- Pregnancy loss, though common and impactful, is underrepresented in reproductive health scholarship.
- Understanding online information behavior post-loss can counter stigma and support diverse narratives.
Purpose of the Study:
- To characterize internet-based information behavior following pregnancy loss.
Main Methods:
- Conducted 9 in-depth interviews with individuals in the US.
- Analyzed interview data using open and axial coding.
Main Results:
- Identified three themes: needed information types, information-related concerns, and information outcomes.
- Key concerns included searchability, persistence, and assessability of online information.
- Interpreted findings using information behavior frameworks like information search and knowledge construction.
Conclusions:
- Pregnancy loss is an under-silenced reproductive health experience.
- Generic pregnancy information spaces should incorporate pregnancy loss needs.
- This integration can support individuals and combat stigma surrounding loss.


