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Patient-generated data in epilepsy care decisions: a scoping review protocol
Virpi Jylhä1,2, Milla Rosenlund1,2, Hanna Kuusisto1,3
1Department of Health and Social Management, University of Eastern Finland, Kuopio, Finland.
JBI Evidence Synthesis
|March 3, 2022
Summary
This scoping review examines patient-generated data in epilepsy care decisions. Understanding this data is crucial for integrating patient values into clinical decision-making for epilepsy management.
Area of Science:
- Neurology
- Health Informatics
- Patient-Centered Care
Background:
- Epilepsy management decisions involve multiple factors, including patient preferences and values.
- Patient-generated data can integrate patient values into clinical decision-making.
- Further exploration of patient-generated data in epilepsy care is needed.
Purpose of the Study:
- To explore the meaning and content of patient-generated data within epilepsy care decisions.
- To identify how patient-generated data influences clinical decision-making in epilepsy.
Main Methods:
- A scoping review methodology will be employed.
- Studies on adult epilepsy patients, their families, or healthcare professionals will be included.
- A comprehensive search of multiple databases and gray literature will be conducted, with no time limit.
Main Results:
- Data extraction by two independent reviewers.
- Results will be presented through narrative summary, tables, and graphs.
- Inclusion of studies in English, Finnish, Swedish, and German.
Conclusions:
- This review will provide insights into the role and nature of patient-generated data in epilepsy care.
- Findings will inform strategies for better patient involvement in epilepsy management.
- The study aims to bridge the gap in understanding patient-generated data for epilepsy clinical decisions.
