Comparing Survivors of Cancer in Population-Based Samples With Those in Online Cancer Communities: Cross-sectional...

Area of Science:

• Oncology
• Digital Health
• Health Services Research

Background:

• Online cancer communities (OCCs) are increasingly utilized by cancer survivors for information and support.
• The growing number of patients participating in OCCs presents unique research opportunities.
• Understanding the characteristics of OCC participants is crucial for accurate research and patient support.

Purpose of the Study:

• To compare cancer survivors in population-based samples with those in OCCs regarding their internet use and illness experience.
• To identify differences and similarities in sociodemographic characteristics and information-seeking behaviors.
• To assess the impact of internet use on healthcare consumption and future eHealth preferences.

Main Methods:

• A comparative study surveyed 539 population-based cancer patients and 531 OCC patients in 2017.
• Population-based participants received paper questionnaires, while OCC participants received web-based questionnaires.
• Data collected included sociodemographics, internet usage patterns, information sources, media use, and eHealth expectations.

Main Results:

• OCC participants were younger, more educated, and more likely to be employed than the general cancer survivor population.
• OCC members placed higher importance on internet resources and peer support (79.9% vs 54.1% for internet; 50% vs 25.8% for peers).
• OCC participants reported more intensive internet use throughout their cancer journey and a greater desire for online interaction.

Conclusions:

• Cancer survivors in OCCs are not representative of the general cancer survivor population due to significant differences.
• Recognizing these demographic and behavioral differences is vital for research involving OCC participants.
• Web-based interventions can enhance patient engagement and shared decision-making in cancer care, but participant bias in OCCs must be addressed.