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Exploring Self-management Needs of Persons With Multiple Sclerosis: A Qualitative Study for Mobile Application

Shahla Damanabi1, Zeinab Salimzadeh1, Leila R Kalankesh1,2,3

  • 1Department of Health Information Technology, School of Management and Medical Informatics (SD, ZS, LRK, RF), Tabriz University of Medical Sciences, Tabriz, Iran.

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This study explored the self-management needs of individuals with multiple sclerosis (MS). Findings identified key themes to improve MS self-management, informing the development of a supportive mobile application.

Keywords:
MS self-managementmobile appmobile application

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Area of Science:

  • Neurology
  • Digital Health

Background:

  • Multiple sclerosis (MS) is a leading cause of neurologic disability in young adults.
  • Individuals with MS face daily challenges requiring effective self-management strategies.
  • Self-management is crucial for improving quality of life in persons with MS.

Purpose of the Study:

  • To explore the self-management needs of persons with multiple sclerosis (MS).
  • To inform the development of a mobile application for MS self-management.
  • To understand the lived experiences of individuals managing MS.

Main Methods:

  • Qualitative study involving 12 individuals with MS.
  • Semistructured interviews were conducted and analyzed using inductive content analysis.
  • Snowball sampling was used to recruit participants.

Main Results:

  • Seven key themes emerged: information sources, basic needs, understanding MS, physical exercise, nutrition, MS monitoring, and communication.
  • Twenty-three subthemes were identified within the main themes.
  • Participant experiences highlighted essential areas for self-management support.

Conclusions:

  • Identified themes are vital for enhancing self-management capabilities in persons with MS.
  • Findings support the creation of mobile applications to aid MS self-management.
  • This research provides a foundation for user-centered digital health interventions for MS.