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Bleeding Disorders in Women and Girls: State of the Science and CDC Collaborative Programs

Vanessa R Byams1, Connie H Miller1,2, Fiona M Bethea1

  • 1Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.

Journal of Women'S Health (2002)
|March 11, 2022
PubMed

Insights

Women and girls with bleeding disorders face significant health challenges due to abnormal bleeding. This report highlights CDC efforts in surveillance, research, and education to improve diagnosis and care for these individuals.

Area of Science:

  • Hematology
  • Public Health
  • Women's Health

Background:

  • Women and girls with bleeding disorders experience excessive bleeding impacting health and quality of life.
  • Understanding the biology, types, and clinical care is crucial for effective management.

Purpose of the Study:

  • To provide an overview of bleeding disorders in women and girls.
  • To describe Centers for Disease Control and Prevention (CDC) activities in surveillance, research, and health promotion.
  • To identify and address gaps in diagnosis and care.

Main Methods:

  • Review of CDC activities including surveillance data analysis.
  • Scientific review of current research and literature.
  • Development of public health and educational programs.

Main Results:

  • Surveillance and research findings inform public health programs.
  • Programs aim to improve diagnostic and healthcare services.
  • Empowering women with knowledge to navigate the healthcare system.

Conclusions:

  • Improved provider awareness and understanding of unique needs are essential.
  • Achieving appropriate care and treatment ensures optimal outcomes.
  • Continued efforts are needed to enhance the quality of life for women and girls with bleeding disorders.

Keywords:
bleeding disordersheavy menstrual bleedinghemophiliasurveillancevon Willebrand disease

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