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Published on: February 26, 2013
Living with Atrial Fibrillation: A Family Perspective
Stine Rosenstrøm1,2, Signe Stelling Risom3,4,5, Jens Dahlgaard Hove2,6
1Nursing and Healthcare, Department of Public Health, Aarhus University, Aarhus, Denmark.
Insights
Living with atrial fibrillation (AF) significantly impacts families, causing emotional distress and necessitating life adjustments. Patients and families need support to manage AF challenges effectively.
Area of Science:
- Cardiology
- Qualitative Health Research
Background:
- Atrial fibrillation (AF) is a prevalent cardiac arrhythmia with global health implications.
- AF affects not only patients but also negatively impacts family members' perceived health.
- Family perspectives on living with AF are understudied, highlighting a need for more research.
Purpose of the Study:
- To gain insights from patients and family members on the lived experience of living with atrial fibrillation.
- To understand how families cope with and adjust to life with AF.
- To inform the development of family-centered support interventions for AF.
Main Methods:
- Qualitative phenomenological study utilizing Giorgi's descriptive method.
- Data collected through 12 dyadic family interviews.
- Study adhered to the COnsolidated criteria for REporting Qualitative research (COREQ) checklist.
Main Results:
- Three major themes emerged: emotional differences, changes in family life, and uncertainty about the future.
- Atrial fibrillation necessitated multiple adjustments and adaptations within the family unit.
- Families experienced significant emotional and practical challenges adapting to life with AF.
Conclusions:
- Patients and families with AF express a need for open communication regarding emotions and worries.
- Support and guidance are crucial for managing the challenges associated with AF.
- Findings will inform a family-focused intervention to aid adjustment and management of everyday life with AF.
Aim:
The aim of this study was to obtain insights from patients and their family members on how families are living with atrial fibrillation.
Background:
Atrial fibrillation is the most common cardiac arrhythmia and is often described as an emerging global epidemic affecting an estimated 33.5 million people worldwide. Living with atrial fibrillation not only affects the patient but also may negatively influence family members' perceived health. The perspective of the family has previously been understudied, and more knowledge on how patients and their family members cope and adjust to life with atrial fibrillation may be helpful when developing future support for patients and their family members when coping with atrial fibrillation.
Methods:
A qualitative phenomenological study with an inductive, descriptive research approach based on Giorgi's descriptive method was used. Data were gathered through 12 dyadic family interviews. The COnsolidated criteria for REporting Qualitative research checklist was followed while conducting the study.
Results:
Three major themes emerged: emotional differences, changes in family life, and uncertainty about the future. Atrial fibrillation had multiple effects on the family. Frequently, several adjustments and adaptations had to be made to accommodate life with atrial fibrillation.
Conclusion:
Patients with atrial fibrillation and their family members feel a need to talk about their emotions and worries. They required support and guidance to manage the challenges of living with atrial fibrillation. These results will be used in a family-focused intervention designed to support families in adjusting and managing their everyday lives with atrial fibrillation.
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