Development of a research-based classification of approaches to paediatric palliative medicine service provision

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Jo Frost1,2, Jane Hunt3, Jaqui Hewitt-Taylor3

  • 1Bournemouth University/Children's Hospice South West, UK.

Palliative Medicine
|March 15, 2022
PubMed

Insights

Children's palliative care services show significant variation and inequity across the UK. A new classification system highlights the need for integrated, networked approaches to improve care for children with life-limiting conditions.

Area of Science:

  • Paediatric Palliative Medicine
  • Hospice Care
  • Healthcare Services Research

Background:

  • Global development of children's palliative care has led to diverse hospice models.
  • Significant inequities exist in service provision within and between countries.
  • Existing models of care present challenges for integrating specialist children's palliative care.

Purpose of the Study:

  • To classify and describe current paediatric palliative medicine approaches in UK children's and young adults' hospices.
  • To identify variations and inequities in specialist training and consultant involvement.
  • To inform strategies for improving equitable access to paediatric palliative care.

Main Methods:

  • A mixed-methods study utilizing telephone interviews.
  • Involved 31 leaders from 28 UK children's and young adults' hospice organizations (66% of all UK services).
  • Developed a geographic-specialist classification system based on integrated findings.

Main Results:

  • A geographic-specialist classification (Regional specialist, Regional non-specialist, Local specialist, Local non-specialist) was developed.
  • Significant diversity and inequity in paediatric palliative medicine provision were identified.
  • Only 27.5% of doctors had specialist training, and 67.9% of hospices lacked paediatric palliative medicine consultant involvement.

Conclusions:

  • The geographic-specialist classification can guide recommendations for networked paediatric palliative medicine.
  • Integrated specialist children's palliative care models can benefit diverse international contexts.
  • Promoting equity for children with life-limiting conditions requires addressing current service disparities.
Abstract

Keywords:
Hospiceschildpalliative carepalliative medicineyoung adult

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