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Upper Digestive Disease App for Electronic Patient-Reported Outcomes: A Mixed Methods Pilot Study.

Linda L Chlan1, Camryn Wzientek2, Karlyn E Pierson3

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Collecting electronic patient-reported outcomes (ePROs) via the UDD App is feasible and acceptable for esophagectomy patients. This digital tool enhances communication and remote monitoring, showing promise for improving patient care.

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Area of Science:

  • Oncology
  • Gastroenterology
  • Digital Health

Background:

  • Patient-reported outcomes (PROs) are crucial for monitoring symptoms, function, and quality of life.
  • Electronic PROs (ePROs) leverage mobile devices for efficient data collection.
  • Esophagectomy patients require effective tools for ongoing health management post-surgery.

Purpose of the Study:

  • To assess the feasibility of collecting ePROs in esophagectomy patients using the Upper Digestive Disease (UDD) application.
  • To determine the acceptability of the UDD App among esophagectomy patients.
  • To explore patient experiences with digital health tools for post-operative monitoring.

Main Methods:

  • A single-group, mixed-methods design was employed.
  • Esophagectomy patients (n=64) used the UDD App for one year post-diet resumption.
  • Data collection included app usage statistics, patient interviews, and demographic/clinical information.

Main Results:

  • The UDD App demonstrated feasibility, with 50 patients initiating 108 evaluations and 98% completing questionnaires on the first try.
  • A majority of participants (74%) reported high computer literacy and found the app easier than or equivalent to paper forms.
  • Patients valued the app for problem identification, enhanced communication, and convenience, though data privacy concerns were noted.

Conclusions:

  • The UDD App is a feasible and acceptable method for collecting ePROs in the esophagectomy population.
  • The app facilitates remote monitoring and communication, indicating its potential utility in clinical practice.
  • Further research is warranted to evaluate the UDD App's impact on patient symptoms, function, and quality of life.