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Factors that Influence Follow-Up Care for Families of Children with Acquired Brain Injury: A Scoping Review
Jennifer P Lundine1,2, Angela H Ciccia3, Christine Koterba4
1Department of Speech & Hearing Science, The Ohio State University, Columbus, Ohio, USA.
Insights
Access to medical care for children with acquired brain injury (ABI) is improved by understanding factors like education and appointment scheduling. Simplifying recommendations and addressing barriers such as socioeconomic status and transportation is crucial for better outcomes.
Area of Science:
- Pediatric neurology
- Rehabilitation medicine
- Public health
Background:
- Pediatric acquired brain injury (ABI) presents complex challenges for children and families.
- Access to timely and appropriate medical and rehabilitation services is critical for recovery and long-term outcomes.
- Gaps in understanding factors influencing service access hinder effective care delivery.
Purpose of the Study:
- To identify and describe factors influencing medical and rehabilitation service access for pediatric acquired brain injury (ABI).
- To pinpoint literature gaps to inform future research directions in pediatric ABI care.
- To enhance understanding of barriers and facilitators to care for children with ABI.
Main Methods:
- A scoping review guided by the PRISMA framework was conducted.
- Searched peer-reviewed databases for articles published between January 2008 and December 2020.
- Included studies examined variables related to service receipt or initiation for children with ABI; excluded review and non-English articles.
Main Results:
- Nine studies met inclusion criteria, identifying key factors in four areas: education/recommendations, appointment logistics, child-specific factors (age/injury), and sociocultural influences.
- Facilitators included well-scheduled appointments and straightforward recommendations.
- Barriers comprised overwhelming recommendations, socioeconomic factors, and transportation challenges impacting families and schools.
Conclusions:
- This review highlights research directions to improve care access and recommendation implementation for pediatric ABI.
- A deeper understanding of influencing factors can lead to reduced unmet needs and improved long-term outcomes for children with ABI.
- Targeted interventions addressing identified barriers are essential for optimizing care delivery.
Purpose:
To describe factors that contribute to medical/rehabilitation service access following pediatric acquired brain injury (ABI) and identify gaps in the literature to guide future research.
Materials & Methods:
The PRISMA framework for scoping reviews guided this process. Peer-reviewed journal databases were searched for articles published between 1/2008 and 12/2020, identifying 400 unique articles. For full inclusion, articles had to examine a variable related to the receipt or initiation of medical/rehabilitative services for children with ABI. Review articles and non-English articles were excluded.
Results:
Nine studies met full inclusion criteria. Included studies identified factors focused on four primary areas: understanding brain injury education/recommendations and ease of implementing recommendations, ease of scheduling and attending appointments, age/injury factors, and sociocultural factors. Well-scheduled appointments and simple strategies facilitated families' access to care and implementation of recommendations. An overwhelming number of recommendations, socioeconomic variables, and transportation challenges served as barriers for families and schools.
Conclusions:
This scoping review offers several directions on which researchers can build to improve access to care and recommendation-implementation for families who have a child with an ABI. Enhanced understanding of these factors may lead to better service access, reduction of unmet needs, and enhanced long-term outcomes for children with ABI.
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