Patients' experience of necrotising otitis externa: a qualitative study

Area of Science:

• Infectious Diseases
• Patient Experience Research
• Qualitative Health Research

Background:

• Necrotising otitis externa is a severe infection often affecting frail patients.
• Delayed diagnosis and severe pain are characteristic features.
• Patient-centered data is crucial for understanding the condition's impact.

Purpose of the Study:

• To qualitatively analyze patient-centered data on necrotising otitis externa.
• To identify key themes in the patient experience of this condition.
• To inform improvements in clinical care and research.

Main Methods:

• Open-ended questionnaires administered to 28 patients.
• Grounded theory approach for qualitative analysis.
• Constant comparison technique for theme development.

Main Results:

• Four primary themes emerged from patient responses: severe pain, mental health impact, quality of life reduction, and diagnostic delays.
• Patient experiences highlight significant challenges beyond the physical infection.
• The findings underscore the multifaceted nature of necrotising otitis externa.

Conclusions:

• This study is the first to explore patient perspectives on necrotising otitis externa.
• Findings indicate a need for increased awareness and improved symptom/pain management.
• Results can guide research priorities, service improvements, and the development of a Core Outcome Set.