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The Meaning Given to Bioethics as a Source of Support by Physicians Who Care for Children Who Require Long-Term

Denise Alexander1, Mary B Quirke1, Carmel Doyle1

  • 1School of Nursing and Midwifery, The University of Dublin, 8809Trinity College Dublin, Dublin, Ireland.

Qualitative Health Research
|March 29, 2022
PubMed

Insights

Physicians

Area of Science:

  • Pediatric Intensive Care
  • Bioethics
  • Medical Ethics

Background:

  • The role of bioethics in pediatric intensive care for technology-dependent children is not well understood.
  • Physicians' perceptions of bioethics support during long-term ventilation (LTV) care are unclear.

Purpose of the Study:

  • To explore physicians' understanding and experiences of bioethics support for children requiring technology dependence.
  • To investigate how bioethics input is perceived by physicians in pediatric intensive care.

Main Methods:

  • Hermeneutic phenomenological approach used for data collection and analysis.
  • Unstructured interviews conducted with 40 physicians across four countries in 2020.

Main Results:

  • Physicians' perceptions of bioethics support are influenced by trust, communication, and acceptance.
  • Experiences ranged from satisfaction to disappointment with bioethics input in critical decisions.
  • Bioethics services are inconsistently perceived as a source of support by physicians.

Conclusions:

  • Bioethics services can potentially aid physicians in navigating complex pediatric critical care decisions.
  • Improving interactions between clinicians and bioethics services is needed for consistent support.
  • Findings provide a basis for enhancing the role of bioethics in pediatric intensive care.

Keywords:
assistive technologyethicsintensive care unitlong-term health caremoral perspectives

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