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Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
Published on: July 27, 2018
Indigenous sovereignty, data sourcing, and knowledge sharing for health
Carolyn Smith-Morris1, Bia'ni Madsa Juaréz-López2, Andrés Tapia3
1Department of Anthropology, Southern Methodist University, Dedman College of Humanities and Sciences, Dallas, USA.
Indigenous Peoples (IPs) developed unique strategies, including collaborative research and data platforms, to address COVID-19 impacts when federal systems failed. This highlights the need for Indigenous self-governance in public health crises.
Area of Science:
- Public Health
- Indigenous Studies
- Epidemiology
Background:
- COVID-19 pandemic disproportionately affected Indigenous Peoples (IPs).
- Federal systems often failed to adequately support Indigenous communities during the crisis.
- Indigenous organizations and communities initiated their own information-gathering efforts.
Approach:
- Documented strategies employed by Indigenous Peoples (IPs) to understand and respond to the pandemic.
- Examined collaborative efforts within and between Indigenous nations.
- Reviewed the use of open-source data platforms and small-scale epidemiological research.
Key Points:
- Indigenous communities utilized collaborative networks and data platforms to navigate the pandemic.
- Faced challenges related to informational politics and resource acquisition.
- Struggled to balance resource needs with avoiding critiques of 'post-neoliberalism' and 'science denialism'.
Conclusions:
- Indigenous-led initiatives are crucial for understanding and responding to public health crises.
- Emphasized the importance of informational and medical self-governance for Indigenous communities.
- Proposed strategies for improving support and understanding of Indigenous needs during health emergencies.
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