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Clinical ethics support services in paediatric practice: protocol for a mixed studies systematic review on
Mariana Dittborn1,2, Bernardita Portales2, Joe Brierley3
1Paediatric Bioethics Centre, Great Ormond Street Hospital for Children, London, UK mariana.dittborn@gmail.com.
This systematic review synthesizes evidence on pediatric clinical ethics support services (p-CESS), evaluating their structures, processes, and outcomes. Findings will inform quality standards and future research for these vital services.
Area of Science:
- Medical Ethics
- Pediatric Healthcare Quality
- Systematic Review Methodology
Background:
- Clinical ethics support services (CESS) are increasingly recognized globally.
- Paediatric-specific CESS (p-CESS) have received limited research attention.
- Existing adult CESS evidence may not be generalizable to pediatric populations.
Purpose of the Study:
- To systematically identify, appraise, and synthesize evidence on p-CESS.
- To provide a foundation for quality evaluation and minimum standards for p-CESS.
- To address the gap in knowledge regarding pediatric clinical ethics support.
Main Methods:
- Mixed-studies systematic review of empirical studies in English/Spanish.
- Searched seven databases (MEDLINE, PsycINFO, etc.) using terms related to "clinical ethics support," "paediatrics," and "structure/process/outcome."
- Employed narrative and thematic synthesis guided by Donabedian's framework; quality assessed with MMAS (2018).
Main Results:
- Evidence synthesis on structures, processes, and outcomes of p-CESS is currently limited.
- The review will identify key characteristics and impacts of existing p-CESS models.
- Data on the evaluation and impact of p-CESS will be systematically compiled.
Conclusions:
- Robust evidence on p-CESS structures, processes, and outcomes is needed.
- This review will inform the development of quality indicators and best practices for p-CESS.
- Findings will guide future research and policy for pediatric clinical ethics support.
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